Hello all-- Samuel had a procedure today in which 2 drs. used a scope to look at his lungs and stomach. It showed a normal stomach and digestive tract. The top muscle of the stomach closes pretty well (not perfect, but good enough, this means we can control the spitting up without having to stitch the top of the stomach shut). The lungs and airway show that Samuel does have tracheal malasha (spelling?? his airway is floppy, leading to loud sounds when he breathes and increased risk from aspiration). The airway also showed signs of aspiration, meaning liquid has been getting into the lungs. This was expected. The drs. decided to do the swallow study tomorrow to see how bad the aspiration is, but Samuel will have a G tube put in either way, so he'll have another surg. on Wednesday. For now, they don't think they need to stitch the top of his stomach shut, and they don't think they have to put a tube into the intestine (both of which would have made the procedure much more complicated). so, that's where things are. Samuel is looking at surg/procedure #2 for Wednesday and will be in the hospital until AT LEAST Friday. No much more to say than that. Samuel is in good spirits, though he has an IV in the hand he usually sucks on, so that makes him a bit unhappy. Thanks again for all the prayers, and a HUGE shout out to Erin and Ryan who came and sat with my mom while they did the procedure today and brought lunch and dinner. They ROCK!!! (Jeff and I had to work, so we weren't there until the late afternoon) Thanks again to everyone.
Tracy, Jeff, Shahra and Samuel.
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